Table of Contents
Table of Contents
12 List of Illustrations
15 Foreword
Professor Eitan Yefenof, Ph.D.
Director, Lautenberg Center for Immunology and Cancer Research
16 Preface
18 Acknowledgments
20 A Set of Questions to Help Define What You May Need to Know
i First StepsFacing a diagnosis and assembling your team
25 How to Find the Medical Team for You
Kathleen Toomey, M.D.
27 I Was Only Twenty-Seven
Pamela Adams
27 Focusing Beyond the Cancer
Marion Behr
30 The Primary Care Doctor on the Cancer Team
Barrie L. Raik, M.D.
33 Denial
Joyce Greenberg Lott
37 Concerns of a Family Physician
Julie Ann Juliano, M.D.
ii Hand in HandAdditional partners on the road to wellness
41 Your Oncology Nurse Practitioner
Debra A. Walz, R.N., M.S., W.H.N.P.-B.C., A.O.C.N.P., STAR/C
43 My Experience as a Cancer Study Participant
Sushma Prasada
46 Will I Live?
Peggy S.
47 The Role of the Gynecologist in Breast Cancer
Susan N. McCoy, M.D.
51 Experiencing Ovarian Cancer
Pam Cooper
iii The Diagnostic ProcessDefining the condition
55 My Daughter Was Only Two and a Half
Meera Bagle
58 Family History and Genetic Susceptibility
Ruth Oratz, M.D., F.A.C.P.
61 My Mother Died of Breast Cancer at Forty-Two
Nora Macdonald
63 Lumps and Bumps in the Male Breast: Men Can Get Breast Cancer Too
Dawn Behr-Ventura, M.D., M.P.H.
66 Male Breast Cancer Is Real
Rich Loreti
70 Scars of Life and Love
Dawn Meade
73 Another Yearly Mammogram
Sondra Schoenfeld
74 Mammography, Ultrasound and MRI
Jane Tuvia, M.D.
79 A Radiology Technologist's Advice
Sandra Scott, R.T.(R.)(M.)
83 The Self-Exam
Keshia D. Hammond-Merriman
84 Watchful Waiting
Anne M. Johnston, Ph.D.
89 Of Underlying Concern
Wilbur Dexter Johnston, Ph.D.
iv A Different Kind of Challenge
Lack of diagnostic support in a developing country
91 A Hard Place in My Breast
Men Salath
92 What Happened To and In Me?
Naov Davin
94 Cancer in Cambodia: A Doctor's View
Sedkai Meta, M.D., told by Charulata Prasada
v Major TreatmentsExplained by specialists and described by survivors
97 Medical Options
Richard Margolese, M.D., C.M., F.R.C.S.(C.)
101 Uphill Imperative
Monica Becker
104 A Breast Surgeon's View
Christine Rizk, M.D., F.A.C.S.
111 Breast Reconstruction
William L. Scarlett, D.O., F.A.C.S., F.A.C.O.S., F.A.A.C.S.
114 Breast Cancer and Lymphedema
Marcy McCaw, B.Sc.P.T., C.L.T.
118 Chemotherapy: What Is It and How Should You Prepare for It?
Myra F. Barginear, M.D.
121 The Port Is a Great Invention
Annelise DeCoursin
123 When Pink Was Just a Color
Paula Flory
126 The Grace of Caregiving
Tobias D. Robison
129 Radiation Therapy
Mitchell K. Karten, M.D.
131 Surviving Cancer
Evie Hammerman, M.S.W.
136 Heart
Michael Carr
137 The Man in the Vinyl Chair
Michael Carr
vi Further GuidanceEssential advice for the road to recovery
139 Oncology Social Workers and How We Help
Vilmarie Rodriguez, M.S.W., L.C.S.W.
143 The Importance of a Nurse Navigator
Sherry Melinyshyn, R.N.(EC)., B.N.Sc., C.O.N.(C.), P.H.C.N.P.
145 The Contributions of a Patient Navigator
Cheryl Kott
146 Look GoodFeel Better
Michele Capossela
147 Nutrition and Cancer
Karen Connelly, R.D., C.S.O.
151 Understanding Cancer-Related Fatigue
Meryl Marger Picard, Ph.D., M.S.W., O.T.R.
vii The Whole PersonAddressing the mind, body and spirit
157 Breast Cancer and Spiritual Care
Nomi Roth Elbert, M.Ed., Spiritual Care Provider
159 The Role of the Oncology Social Worker
Elisabeth (Elsje) Reiss, M.S.W., L.C.S.W.
163 Complementary Medicine
Richard Dickens, M.S., L.C.S.W.-R.
168 Using the MindBody Connection to Get Physical and Emotional Relief:
Jin Shin Jyutsu, Gentle Self-Acupressure
Kerry Kay
viii Financing Your WellnessCancer and money management
173 Affording Cancer Treatment
Megan McQuarrie
177 Medical Insurance
Stuart Van Winkle, C.F.P.®
180 The Road to Financial Wellness
Richard A. Fontana, C.F.P.®
183 Essential Help from the Women's Health & Counseling Center
Christine Bonney
186 COBRA: Health Insurance after Job Termination
Omri Behr, Ph.D., J.D.
188 NBCCEDP: A Path for Patients without Insurance or Funds
Omri Behr, Ph.D., J.D.
ix Finding Community and Compassion
Interactions between cancer support organizations and survivors
191 My Cancer Story
Mariann Linfante Jacobson
194 Cancer Support Community
Ellen Levine, M.S.W., A.C.S.W., L.C.S.W., O.S.W.-C.
197 The Most Painful Trial of My Life
Lucinda (Cindy) Newsome
199 Sisters Network: Founding a Chapter
Dorothy Reed
200 When Life Pulls Out the Carpet from Beneath Us… Do Flips!
Pamela Schwartz
203 Seventeen-Year Breast Cancer Survivor
Kathi Edelson Wolder
207 Formation of a Chapter for the Susan G. Komen® Organization
Kathi Edelson Wolder
209 Cancer Hope Network Volunteer
Linda Kendler
210 Cancer Hope Network: All About Hope
Joe Wojtowicz
212 In The Pink: Early Cancer Detection and Education Program
Aretha Hill-Forte, M.P.H.
213 Why?
Jeanette Joyce
215 Breast Cancer Prevention Institute
Angela Lanfranchi, M.D., F.A.C.S.
x Searching for Answers
Two perspectives on research and programs that look to the future
219 Growth Hormone-Releasing Hormone and Its Analogs in Cancer
Andrew V. Schally, Ph.D., Nobel Prize Laureate
221 Good Treatment and Good Science
Richard Margolese, M.D., C.M., F.R.C.S.(C.)
xi Summing It All UpInspiration and information
225 A Relay for Life
Alicia Rockmore
225 What Kept Me Going
Lori Cohen
227 Avon Walk
Tracy Redling
230 Inspiring Hope
Angela Lanfranchi, M.D., F.A.C.S.
233 Mammogram Math
Lora Weiselberg, M.D.
235 The Beginning…
236 Information and Resources for Cancer Patients
240 Contributor Biographies
252 Glossary
260 Index