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    Inside the Dementia Epidemic: A Daughter's Memoir

    Inside the Dementia Epidemic: A Daughter's Memoir

    4.7 13

    by Martha Stettinius


    eBook

    $7.99
    $7.99

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      BN ID: 2940015286960
    • Publisher: Dundee-Lakemont Press
    • Publication date: 09/11/2012
    • Sold by: Barnes & Noble
    • Format: eBook
    • Pages: 353
    • Sales rank: 394,256
    • File size: 1 MB

    Martha Stettinius is a "sandwich generation" mom and the main caregiver for her mother, Judy, who is living with advanced dementia. She works as an editor, and earned a master's in English Education from Teachers College, Columbia University. As an advocate for the needs of family caregivers, she serves as a volunteer representative for New York State for the National Family Caregivers Association, a Washington, D.C.-based advocacy group. For fourteen years she's lived with her husband and two children in an intentional community in Upstate New York.

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    "Inside the Dementia Epidemic: A Daughter's Memoir" is the unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to grow closer to her mother, and to learn to nurture her mother's spirit through the most advanced stages of dementia.

    One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. As baby boomers age, and we all live longer, most of us will know someone with Alzheimer's disease or another dementia, or care for someone with dementia. Alzheimer's disease is the fifth-leading cause of death in the United States for those age 65 and older, but the only one in the top 10 without a means of prevention, a way to slow its progression, or a cure. In the United States, over 15 million family caregivers provide 17.4 billion hours of unpaid care to family members and friends with Alzheimer's disease and other dementias. Sixty percent of family caregivers report feeling extreme stress.

    This memoir is not a lament, however; it is guide, and, the author hopes, a means to soften the blow upon all of us. In the course of the author's experience, she discovered what could have been done earlier to help her mother, and what can be done now to help us all. Ms. Stettinius's greatest gift to readers is that of optimism--that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring.

    Through its intimate scenes and skillful storytelling, Inside the Dementia Epidemic is a call to action for better dementia care, more funding for dementia research, and more support for family caregivers. In the appendices, the author shares facts she wishes she had known years ago, including how to get a diagnosis of Alzheimer's disease; what medications are approved to treat the symptoms of Alzheimer's disease; risk factors for dementia, and possible preventive measures; promising explorations in dementia research; the link between insulin resistance, diabetes, and Alzheimer's disease; the benefits of "memory consultations" and early diagnosis; and national and international movements for more dementia research and better care.

    "Inside the Dementia Epidemic: A Daughter's Memoir" includes source notes, resources for caregivers, and an index.
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    Author - Mary Ellen Geist
    "A remarkable, brutally honest, and beautifully written account of what it's like to take on the role of caregiver for a loved one with dementia."
    Alzheimer's Disease International - Marc Wortmann
    "A special book that combines a very personal story about how a daughter is affected by her mother's illness with a broader perspective on Alzheimer's disease and other dementias. A guide for everyone hit by Alzheimer's and dementia that reads very well."
    USAgainstAlzheimer's - Trish Vradenburg
    "An extraordinarily important book about the journey of a daughter, a mother, a family, and a community when they are struck with Alzheimer's disease. A moving, uplifting, and vital chronicle."
    National Council of Certified Dementia Practitioners - Sandra Stimson
    "An honest, emotionally-charged, and thought-provoking account and life story of the author's mother and the dementia journey."
    Author - Joy Loverde
    "Readers will not only find Martha Stettinius's memoir consoling, they will gain the invaluable advantage of hindsight on things she would do differently if she had to do it all over again."
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